Well…..first let me say that I am honored you are reading my blog. Thank you. Second let me say that some of my posts may be funny, some may be every-day, some may be intense. But they will all be real. Let me tell you a little bit about me. Not too much because if you want to know more you can access my “about” page (it will be up-to-date soon, I promise). I am a mom. I love being a mom. My son is amazing. The absolute light of my life. And my son has a rare genetic syndrome which poses/will continue to pose a threat to a “normal way of life”. But I challenge you…..what is “normal”? Is there really a “normal”? My “normal” may be quite different from your “normal” simply because of the way we live our lives. Which brings me to my next, and most sensitive point. I am technically a mom of a child with “special needs”. But I HATE the term “special needs”. Why exactly is this term considered “nicer” or “more kind” or “more sensitive”? Aren’t everyone’s needs special? Especially when it comes to children. To me, children’s needs seem specifically special. They need lots of attention, lots of care, lots of love, lots of teaching. My son is no different just because he has a syndrome. He needs attention. He needs care. He needs love. And he needs to learn from us. His father and I adapt our parenting techniques to be specially formulated to our son’s needs. Don’t you? So why should I allow “special needs” to define me as a mother? Who my son is as a little boy? Who we are as a family? I would much prefer to be defined by my inventive mothering. I’d much prefer my son be defined by his incredible zest for life. I’d much prefer our family be defined by the love we share openly for each other. Is it fear of the unknown that makes us so different from everyone else? Is it the fear of the misunderstood? Is the overwhelming need everyone seems to have for labels and definitions stemming from their own need to be recognized for what defines them? Regardless, let me tell you one thing from my personal experience right now…..as I said before, my son is technically considered “special needs”… by the majority, by the masses. But my son will make you smile when your day couldn’t get any worse. He’ll make you realize that life is SO worth it, so beautiful, so phenomenal. He’ll make you laugh just when you thought you had no laugh left in you. He has a joy that I’ve never seen before, a smile that is beyond genuine and a giggle that will make you melt. Does he have “special needs”? ABOS-F-ING-LUTLEY!! But is my main goal in life to make sure all of those needs are met, surpassed and demolished…..YOU-FREAKING-BETCHA!!! And do I vow to never let him be defined by some term that was made to be “sensitive”, “kind” or “PC”? Seriously? Do you really have to ask?? Special and needs is no longer in my vocabulary!!!
Thanks for reading my first blog and I hope you’ll stay tuned for the many coming attractions of my amazing son’s journey through life (and my crazy adventures trying to keep up with him!).